Week 1 - Let the Wean Begin!
Current prednisolone dose: 35mg
Current weight: 329.6lbs (oh dear...)
So, we have the go ahead to try and start weaning down the steroids a bit! I’m going to try and post a weekly update with progress on the steroid dose and hopefully some weight loss! Some weeks will just be a random ramble, others may have a more definite topic - but hopefully it’ll keep me posting on here.
I had my 16 week review of xolair on Monday and while it hasn’t massively reduced the number of admissions I’ve had, I produced a variety of graphs (which I will add on here later!) to try and show the difference it has made to me! Finally I persuaded my consultant that actually my admissions aren’t lasting as long, I’ve not required an HDU admission and day to day my peak flow is far more stable and I’m needing much less salbutamol.
So the MDT has agreed to give me some time to try and get my steroids down to 25mg daily and then from that point we’ll give the xolair another 2 months. It’s always difficult when you have more than one thing driving the asthma! - my allergy driven symptoms have improved enormously but unfortunately I’m still getting infections (probably due to the buckets of steroids I take - my most recent admission they put me up to 60mg a day!!!).
I think they wanted me to do a nice slow wean back to 35 from 60 on the ward but my consultant in clinic said I was fine to drop straight back to 35 after a week at 60 - so that’s what I’ve done!! Hopefully by next week I’ll at least be stable on 30mg, which I think will be the lowest dose I’ve managed since February this year!
Let’s do this!!
Current weight: 329.6lbs (oh dear...)
So, we have the go ahead to try and start weaning down the steroids a bit! I’m going to try and post a weekly update with progress on the steroid dose and hopefully some weight loss! Some weeks will just be a random ramble, others may have a more definite topic - but hopefully it’ll keep me posting on here.
I had my 16 week review of xolair on Monday and while it hasn’t massively reduced the number of admissions I’ve had, I produced a variety of graphs (which I will add on here later!) to try and show the difference it has made to me! Finally I persuaded my consultant that actually my admissions aren’t lasting as long, I’ve not required an HDU admission and day to day my peak flow is far more stable and I’m needing much less salbutamol.
So the MDT has agreed to give me some time to try and get my steroids down to 25mg daily and then from that point we’ll give the xolair another 2 months. It’s always difficult when you have more than one thing driving the asthma! - my allergy driven symptoms have improved enormously but unfortunately I’m still getting infections (probably due to the buckets of steroids I take - my most recent admission they put me up to 60mg a day!!!).
I think they wanted me to do a nice slow wean back to 35 from 60 on the ward but my consultant in clinic said I was fine to drop straight back to 35 after a week at 60 - so that’s what I’ve done!! Hopefully by next week I’ll at least be stable on 30mg, which I think will be the lowest dose I’ve managed since February this year!
Let’s do this!!
Comments
Post a Comment