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Showing posts from December, 2019

2019 Round-up!

So we've reached the end of the year and while I haven't posted for a while I thought I would restart with a round-up of the year! Days spent in hospital: 79 (11 weeks, 2 days! The joys!!) HDU stays: 0!!! Down from 3 the year before. Start weight: 329.2lbs End weight: 322lbs (success!) Starting maintenance steroid dose: 35mg prednisolone Ending maintenance steroid dose: 20mg! Current dose: 40mg... (good old viruses) Broken ribs: 2... Cost to the NHS: I dread to think! I survived 2019! Honestly at some points it didn't feel like I would. But not only am I ending the year alive but actually the most well I've been for a couple of years! I finally started immunoglobulin replacement therapy for my immune system in September and to say its helped is a huge understatement. Yes I have to sit around for 2 hours every week with needles in my stomach running my infusion but its a small price to pay to have some of my life back! The last couple of months have be